Tony gets out and about
Article originally published in the Lithgow Mercury (NSW), 28 July 2017.
Brigitte Krstanoski has been caring for her son, Tony, for nearly 33 years.
Tony has intellectual and physical disabilities and he has been receiving National Disability Insurance Scheme (NDIS) funding since November.
“Tony is finally able to have the life he deserves,” Mrs Krstanoski said.
“He’s enjoying his life now – he doesn’t like being home, he likes going out. “He wants to be able to do the things any other man his age would, not stay home with his mum and dad.”
Tony spends weekdays with Nepean Area Disabilities Organisation (NADO), and heads out on day trips with other organisations on the weekends. One of the big changes Tony’s NDIS package has enabled is he now has one-on-one support every second Wednesday. This means the activity he does is just for Tony and it can be what he wants each and every time.
The family also has much more control over what services and support Tony receives.
“Together we are able to say what we want, when we want it, and how we want it,” Mrs Krstanoski said.
Another advantage of the NDIS for the Krstanoski family is with Tony happy and engaged in activities outside the home, Mrs Krstanoski and her husband have time together again.
“Having a child with a disability changes your life,” she said. “We weren’t like husband and wife anymore – we’d have to beg for help for an evening of respite just to go out for dinner together.
“Now, with Tony going out on Sundays, my husband and I have time together. We can have lunch and just chill and relax.
“We’re thinking of going on a holiday somewhere later this year. It’ll be our first holiday since before Tony was born.”