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Participant Reference Group Meeting Summary – 13 December 2023

This bulletin summarises the Participant Reference Group’s (PRG) recent meeting. The PRG consists of 23 participant and carer representatives across Australia. The PRG is a key platform to ensure the participant voice is heard and understood by the National Disability Insurance Agency (NDIA). Feedback from meetings is used to inform strategy, policy development, system and service delivery development and review, to support continuous improvement. Chairperson’s welcome Debbie Irvine, NDIA Director of the Participant First Engagement Initiative and Donna Purcell from the Office of the Participant Advocate, welcomed members to the tenth PRG meeting for 2023. In this meeting we heard...
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Participant Reference Group Meeting Summary – 14 and 15 November 2023

This is a summary of the Participant Reference Group’s (PRG) recent meeting. The PRG consists of 23 participant and carer representatives across Australia. The PRG is a key platform to ensure the participant voice is heard and understood by the National Disability Insurance Agency (NDIA). Feedback from meetings is used to inform strategy, policy development, system and service delivery development and review, to support continuous improvement. Chairperson’s welcome Debbie Irvine, NDIA Director, Participant First, welcomed members to the tenth meeting for 2023. This meeting was a live event held over 2 days in Melbourne, Victoria. Debbie thanked PRG members for...
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Peter marches with Mardi Gras history pride, as original 78er

More than 45 years after he bravely helped blaze a trail of inclusivity and marched into the history books of Australia, Melbourne’s Peter Ohlson, an original 78er, will once again march with pride at Sydney’s Gay and Lesbian Mardi Gras this year. Peter, who is legally blind and has limited mobility after having multiple strokes as a teenager, will again take to the streets to wave the flag for LGBTQIA+ inclusion and diversity. Despite Peter’s challenges, with support from the NDIS, he will celebrate his identity alongside his loving partner of 34 years, Adrian, and hundreds of thousands of others...
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Bree and Mitch built their capacity to self-manage by starting small and learning what works best for them

Bree and Mitch self-manage their son Dax’s NDIS plan. Dax is a young surfer who loves to be around friends, play outside and ride his modified bike. Dax’s goals in his NDIS plan include increasing his independence, communication, and participation in social and community activities. Over 4 years, Bree and Mitch have gone from self-managing part of Dax’s plan to all of it. ‘In the first few years we opted for the NDIA to manage Dax’s funding for equipment such as wheelchairs and walking frames. We are now self-managing this support,’ says Bree. ‘I really like having direct contact with...
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Parents Jennifer and Josh are thinking creatively to get the most from their sons’ NDIS plans 

Jennifer and Josh self-manage the NDIS plans for their young sons Henry and Connor. Henry and Connor are both bubbly, energetic kids who love learning new things. Self-management has allowed them to source supports that are both good value and provide long-term benefit. ‘It is important to listen to what the boys want and how they wish to pursue their goals,’ says Jennifer. ‘Self-management has given us the control to make decisions on what we can do and which providers we can use.’ Henry has regular physiotherapy sessions to help build his strength, develop his confidence, and pursue his goal...
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