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The Autism Advisory Group (AAG) meeting summary for 7 August 2025

The Neurodegenerative Palliative Care and Rare Diseases Advisory Group (NPRAG) met on 5 August 2025.

The NDIS recognises the passing of Gavin Burner, a valued member of the Independent Advisory Council (IAC). He was also the Co-Chair of the Intellectual Disability Reference Group.

Quote from an attendee: I think it is important, the old, 'you don't know what you don't know...' guidance is needed when connecting and applying to the NDIS. What we talked about Topic 1: Connect and Apply The Group talked about how future ideas could improve the ‘Connect’ and ‘Apply’ steps for parents, carers, and children under 9 years old engaging with the NDIS. This built on the challenges they found in Meeting #7. In small break out groups the discussion focused on the experiences and ideas shared by attendees across key stages: Recognising a need and seeking help Learning...

This statement provides an update on a cyber incident that occurred in April 2023 involving the unauthorised access of personal information held by HWL Ebsworth in relation to certain NDIS participants, prospective participants, their families and carers, and staff who were involved with NDIA legal matters represented by HWL Ebsworth. This statement does not relate to a new or different event.

What we talked about Topic 1: NDIA Gender Equity Strategy The National Disability Insurance Agency (NDIA) is currently developing a Gender Equity Strategy (the Strategy) to address gender disparities within the Scheme. According to the latest NDIS Quarterly Report, 38% of current participants in the Scheme are female, 1% are other, and 60% are male. To ensure the Strategy is grounded in lived experience and expert insight, the NDIA is in the process of engaging with several stakeholders, including members of the Independent Advisory Council who identify as female, and Women With Disabilities Australia among others. The Agency is consulting...