Neurodegenerative, Palliative Care and Rare Diseases Advisory Group

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The Neurodegenerative, Palliative Care and Rare Diseases Advisory Group (NPR) was established in May 2024 to provide strategic advice to the NDIA on a set of defined issues relating to Neurodegenerative and Neuromuscular or rare conditions or those requiring palliative care.

Membership

Membership includes representatives intended to reflect the diversity of the neurodegenerative disorder, palliative care and rare conditions communities. 
Consideration is also applied with a view to geographic and gender diversity, as well as having a minimum of two people with neurodegenerative disorders as members of the group. 

Communiques

May 2024 communique

The Neurodegenerative, Palliative Care and Rare Diseases Advisory Group (NPR) met online on 23 May 2024.

Read the full May 2024 communique.

This page current as of
26 September 2024
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