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The Neurodegenerative, Palliative Care and Rare Diseases Advisory Group was established in May 2024 to provide strategic advice to the NDIA on a set of defined issues relating to participants with neurodegenerative, neuromuscular or rare conditions, or those requiring palliative care.
Membership
Membership includes representatives intended to reflect the diversity of the neurodegenerative disorder, palliative care and rare conditions communities.
Consideration is also applied with a view to geographic and gender diversity, as well as having a minimum of two people with neurodegenerative disorders as members of the group.
Current members:
- Olivia Nassaris – Parkinsons Australia (Co-Chair)
- Katie Snell – MS Australia
- David Ali – MS Australia
- Anne Wilson – Emerge Australia
- Clare Stuart – Mito Foundation
- Kylie Miskovski – Dementia Australia
- Gail Hilton – Childhood Dementia Initiative
- Fiona Lawton – Rare Voices Australia
- Dr Bronwyn Morkham – Young People in Nursing Homes
- Josh Fear – Palliative Care Australia
- Clare Sullivan – MND Australia
- Lenni Duffield – Huntington's Australia
- Julie Neil – Huntington's Australia
Meeting summaries
2026 meeting summaries
2025 meeting summaries
- 24 September 2025 meeting summary
- 5 August 2025 meeting summary
- 28 May 2025 meeting summary
- 26 March 2025 meeting summary
- 29 January 2025 meeting summary.